Commercial

iStock_000014172667XSmall

Content Development for an International Multi-Stakeholder Rare Disease Patient Registry

GlobalEpi Research provided expert recommendations and developed multiple online questionnaires and data collection tools for the creation of an international rare disease patient registry that is intended to meet the varying research objectives of the multiple registry stakeholders, which include a patient advocacy group, multiple international industry groups, and numerous disease experts from around the world.

chromesomes

Prevalence of a Rare X-Linked Genetic Disorder

To estimate the upper-bound prevalence of a rare X-linked genetic disorder with a variable phenotype and no ICD code, GlobalEpi Research participated in an expert panel, performed a comprehensive review of published and unpublished data, and developed a data-driven correction factor based on sources of under-ascertainment and under-diagnosis in order to estimate the upper-bound prevalence of the disorder.

image_intro1

Huntington’s Disease Prevalence and Associated Rates in the United States

GlobalEpi Research performed a systematic literature review and applied meta-analytic techniques to establish a most likely range for the current prevalence of Huntington’s disease in the United States, based on existing historical prevalence data, analysis of patient registry data, and adjustment of published data by a correction factor derived from capture-recapture methods to account for ascertainment bias.

iStock_000001807908Small

Identification of International Cancer Incidence Data for Use in Patient Flow Models

For multiple countries, GlobalEpi Research evaluated the representativeness and validity of existing incidence data for use in patient flow models; recommended the optimal data sources, including making evidence-based adjustments to account for under-ascertainment (when appropriate); and identified country- and region-specific data to provide additional key epidemiological inputs to the country-specific models.

industrial

Epidemiological Studies of the Health Risks of Fossil Fuel Refinery Work

Over an 8 year period, GlobalEpi Research performed a series of epidemiological studies aimed at characterizing and measuring the health risks among workers at the Marcus Hook refinery. Studies included a cohort study of cancer incidence and mortality; creation of a job-exposure matrix to characterize specific chemical exposures over an 80 year refinery history by job title, process unit, and location; and case-control studies to identify the specific chemicals and processes associated with increased rates of cancer in the refinery.


Government

NIOSH logo

NIOSH Survey of Compliance with the OSHA Bloodborne Pathogens Standard Among Non-Hospital Healthcare Facilities

GlobalEpi Research designed a web-based survey instrument to assess existing exposure control plans and infection control practices for bloodborne pathogens in dental healthcare settings. This project was conducted in conjunction with the Organization for Safety, Asepsis and Prevention (OSAP), funded by a grant from the Centers for Disease Control and Prevention (CDC) National Institute for Occupational Safety and Health (NIOSH).

CDC logo

CDC Vision Health Initiative, Division of Diabetes Translation

GlobalEpi Research assessed the state of vision health surveillance and examined the ability of current surveillance systems to assess and monitor disparities in visual impairment, eye disease, vision-related functioning, social participation restriction, access to vision and eye care, and access to support and services for those who need vision rehabilitation.  To facilitate development of a model that would propose a strategic path to enhancing vision surveillance in the US, GlobalEpi Research convened an expert panel; conducted a thorough scientific review of surveillance instruments and strategies resulting in a formal report; conducted the expert panel meeting; and prepared a synthesis report of the expert panel meeting.

CDC logo

Data Analysis to Enhance the Administrative and Technical Operations of the CDC’s Older Adult Falls Activities

GlobalEpi Research conducted statistical analyses of data from the Medicare Current Beneficiary Survey (MCBS) to describe the relationship between older adult falls and activities of daily living, physical activity, pre-existing medical conditions, housing factors, and medication use.

CDC-INFO_logo

CDC National Contract Center (CDC-INFO)

GlobalEpi Research assessed the state of vision health surveillance and examined the ability of current surveillance systems to assess and monitor disparities in visual impairment, eye disease, vision-related functioning, social participation restriction, access to vision and eye care, and access to support and services for those who need vision rehabilitation. To facilitate development of a model that would propose a strategic path to enhancing vision surveillance in the US, GlobalEpi Research convened an expert panel; conducted a thorough scientific review of surveillance instruments and strategies resulting in a formal report; conducted the expert panel meeting; and prepared a synthesis report of the expert panel meeting.